 |  |
 |  |  |
| |
| | |
| Format | Title/Individual author(s) | Publisher/Source | Notes |
| Phase I Top of page | |||
| article | Informacion General Sobre: Lesion Cerebral (General Information Sheet: Brain Injury, by NICHCY) | Brain Injury Association, Inc. (See below) | One of few materials available in Spanish. (FREE) |
| book | Traumatic Head Injury: Cause, Consequence and Challenge | Head Injury Association of KS & Greater Kansas City Inc. 1100 Pennsylvania, Suite 305 Kansas City, MO 64105 (816) 842-8607 1-800-783-1356 | Contains glossary and descriptions of health care providers. |
| book | Brain Injury Glossary (Lehmkuhl, ed.) | HDI Publishers (See below) | ($9.50) for printed format. Also available for Windows ‘95, Windows 3.1 or IBM-formats. 850 entries. |
| booklet | Preguntas sobre lesion traumatica del cerebro (Basic Questions About Head Injury and Disability, a "Tailored Information Packet") | Brain Injury Association, Inc. (See below) | One of few materials available in Spanish. ($2.00) |
| booklet | Daño cerebral: Guía para familiares y cuidadores (José León-Carrión) | Brain Injury Association, Inc. (See below) | One of few materials available in Spanish. ($12.50) |
| booklet | About Head Injuries | Channing L. Bete Co., Inc. 200 State Rd., South Deerfield, MA 01373 1-800-628-7733 | Covers basic information including identifying the members of the treatment team and how to take care of yourself as a caregiver. Good for physicians' office/clinic distribution. |
| misc. | Introductory Information for Families | Brain Injury Association, Inc. (See below) | A collection of readings. Basic information about TBI, guide for selecting rehabilitation facility, and information about the Brain Injury Association. ($7.00) |
| Phase II Top of page | |||
| article | A survey of accredited and other rehabilitation facilities: Education, training, and cognitive rehabilitation in brain injury programs. | Brain Injury, 7(4), 319-331. Also available through: The National Information Clearinghouse | |
| article | Severe Brain Injury (Adapted from "Coma: Its Treatment and Consequences") | Brain Injury Association, Inc. (See below) | This article is in hand out format and would be appropriate for use in clinic or hospital setting. |
| article | Fact Sheets: Head Injury Finding an Attorney Conservatorships Legal Planning for Incapacity Coping with Behavior Problems After Head Injury --plus others | Family Caregiver Alliance 425 Bush Street, Suite 500 San Francisco, CA 94108 (415) 434-3388 FAX: (415) 434-3508 E-mail: info@caregiver.org Web: http://www.caregiver.org | Good information with resources and hotline numbers on the back. May be somewhat more relevant for people who live in California. Families may want to order separately: up to 5 titles: $1.00; up to 6 titles, $2.00. Professions may want to order complete set with binder: $15.00. Many are available in Chinese and/or Spanish. |
| article | Know Your Brain | National Institute of Neurological Disorders and Stroke National Institutes of Health P.O. Box 5801 Bethesda, MD 20824 1-800-352-9424 FAX: (301) 402-2186 | Basic information about the brain with simple drawings. |
| article | Subarachnoid Hemorrhage and Aneurysm ("Learning" series, 1993) | University Hospital & Clinics One Hospital Drive Columbia, MO 65212 (573) 882-4141 | This publication includes easy to read, general information plus a glossary and schematic diagrams. This publications would be most appropriate for use with recently head injured patients. |
| audio | Neuropsychological Assessment: What it does and does not do. (Kay & Mateer) | Brain Injury Association, Inc. (See below) | ($10.00) |
| book | Head Injury: A Family Matter (J. Williams and T. K., 1991) | Paul H. Brooks Publishers | Can be ordered through a bookstore. ($30.00) |
| book | Coming Home: A Discharge Manual for Families of Persons with a Brain Injury | HDI Publishers (See below) | ($12.50) |
| book | Head Injury and the Family: A Life and Living Perspective (Arthur E. Dell Orto & Paul W. Power, 1994). | PMD Publishers Group, Inc. PO Box 4116 Winter Park, FL 32793 Also available through: St. Lucie Press 100 E. Linton Blvd., Suite 403B Delray Beach, FL 33483 (407) 274-9906 FAX:( 407) 274-9927 | One of the best books written in this area. Easy to read, written with family, caregivers and patients in mind. Includes exercises and vignettes. Winner of an award for Excellence in Medical Communication. |
| book | Traumatic Brain Injury Rehabilitation Training Consortium Monoraph Series Volume 2: Assistive Technology in Traumatic Brain Injury Vocational Rehabilitation | St. Lucie Press 100 E. Linton Blvd. Suite 403B Delray Beach, FL 33483 (407) 274-9906 FAX: (407) 274-9927 | Assistive technology, under the ADA, is that designed for and used by individuals with the intent of eliminating, ameliorating, or compensating for functional limitations. Coverage includes impaired functions that limit vocational outcome, behavior concerns in the workplace, maximizing a client's residual knowledge skills, use of computers and adapting work environments. ($19.95) |
| book | The Patient Guide to the Human Brain (1990) | Tim Peters and Company Inc Gladstone, NJ 07934 (Distributed by Geigy) | A pictorial guide to the brain and brain diseases. This publication is good for use along with professional explanation and guidance. |
| booklet | Substance Abuse Task Force White Paper (1988) | Brain Injury Association, Inc. (See below) | Review of the literature on substance abuse and head injury. Includes statistics, and treatment options, strategies and extensive bibliography. ($7.50) |
| booklet | Individual Psychotherapy with the Brain Injured Adult (H. Carberry & B. Burd, 1986) | Brain Injury Association, Inc. (See below) | ($1.00) |
| booklet | Catastrophic Injury Cases: The Relationship of Traumatic Brain Injury and Spinal Cord Injury (J.A. Harp, J.S. Taylor & T. Elliott, 1989) | Brain Injury Association, Inc. (See below) | ($3.00) |
| booklet | Behavioral and Psychosocial Sequelae of Pediatric Head Injury (T. McGuire & M. Rothenberg, 1986) | Brain Injury Association, Inc. (See below) | ($3.50) |
| booklet | Application of Neuropsychological Test Results to Interdisciplinary Cognitive Rehabilitation with Head Injured Adults (R. Tankle, 1988) | Brain Injury Association, Inc. (See below) | ($2.00) |
| booklet | Recovery and Cognitive Retraining after Craniocerebral Trauma (Prigatano, 1987) | Brain Injury Association, Inc. (See below) | ($3.00) |
| booklet | Mild Brain Injury: Damage and Outcome (Wayne Alves & John Jane, 1985) | Brain Injury Association, Inc. (See below) | ($3.00) |
| booklet | Adolescents with Closed Head Injuries: A Report of Initial Cognitive Deficits (Elisa Slater & Susan Bassett, 1988) | Brain Injury Association, Inc. (See below) | ($2.50) |
| booklet | Spouses of Persons Who Are Brain Injured: Overlooked Victims (E. Ziegler, 1987) | Brain Injury Association, Inc. (See below) | ($1.00) |
| booklet | Guide to Selecting and Monitoring Head Injury Rehabilitation Services (M.S. Reitter, 1992) | Brain Injury Association, Inc. (See below) | ($2.00) |
| booklet | Introduccion para los pacientes y sus familias, Los lesion oculta: Un trauma menor de la cabeza (The Unseen Injury: Minor Head Injury) (Thomas Kay, PhD) | Brain Injury Association, Inc. (See below) | One of few materials available in Spanish. ($1.00) |
| booklet | Trauma Cerebral Un folleto para familias (Head Injury: A Booklet for Families) (Ruth & Terry Hutchinson and the Texas Head Injury Assn.) | Brain Injury Association, Inc. (See below) | One of few materials available in Spanish. ($1.00) |
| booklet | Questions to Ask at a Post-Acute Rehabilitation Program | Family Caregiver Alliance 425 Bush Street, Suite 500 San Francisco, CA 94108 (415) 434-3388 FAX: (415) 434-3508 E-mail: info@caregiver.org Web: http://www.caregiver.org | A guide for families and professionals caring for survivors of traumatic brain injuries. ($10.00) |
| booklet | Head Injury: A Guide for families | HDI Publishers (See below) | Structured by problem with examples and practical coping strategies. ($9.50) |
| booklet | Family and brain injury selected bibliography (Kreutzer, 1990) | Natl. Information Clearinghouse (See below) | ($4.00) |
| booklet | Brain Injury and Alcohol (Robert L. Karol & Dorothy Halla-Poe, 1987) | Thomas & Company, Inc. Minneapolis, MN | Workbook designed to be used with a health care professional. |
| manual | Brain Injury: Survivor and Caregiver Education Manual | Aspen Publishers, Inc. 200 Orchard Ridge Drive Gaithersburg, MD 20878 1-800-638-8437 (8:30-5:00 ET) | Loose pages designed to be copied for handouts. Has 30-day free review. Supplements will be automatically sent and charged to you unless you notify Aspen in writing. ($169.00) |
| manual | Family Articles about Traumatic Brain Injury | Therapy Skill Builders Psychological Corporation 1-800-228-0752 (FAX: 1-800-232-1223) | Includes handouts and resource information. 79 articles. 90 day money back guarantee. ($89.00) |
| misc | Legal and Financial Issues for Families | Brain Injury Association, Inc. (See below) | Packet designed for families that explores some of the legal and financial issues faced after TBI. ($10.00) |
| pamph | Head Injury: "What do we do now?" | MO Dept. of Health Division of Injury Prevention Head Injury Rehabilitation and Local Health Services Traumatic Head Injury Program P.O. Box 570 Jefferson City, MO 65102-0570 1-800-451-0069 | Head injury pilot project, contact information for a service coordinator. |
| video | The Unseen Injury: Minor Head Injury (1986) | Brain Injury Association, Inc. (See below) | Designed specifically for viewing by family members. Single copies of the professional and family brochures accompany the tape ($70.00 set). Additional brochures available. |
| video | Surviving Coma: The Journey Back (1987) | Brain Injury Association, Inc. (See below) | Documentary originally aired on PBS. This is a short version with less emphasis on euthanasia. ($95.00) |
| video | The Effect of Head Injury on the Family | Natl. Information Clearinghouse (See below) | 19 minutes. ($35.00) |
| video | Family Perspectives on Head Injuries | Natl. Information Clearinghouse (See below) | 19 minutes. ($35.00) |
| video | The Impact of Brain Injury on Relationships: Three Personal Stories | Natl. Information Clearinghouse (See below) | 20 minutes. ($35.00) |
| video | The Brain and Behavior | The Transitional Learning Community 1528 Postoffice Street Galveston, TX 77550 1-800-TLC-GROW | Understanding the brain. Effects of head injury are discussed in terms of behavior. ($75 each, $200 for set of 3). Extra workbooks are available for $5.00 each. Series sample tape is available for $5.00 |
| video | The Maze | The Transitional Learning Community 1528 Postoffice Street Galveston, TX 77550 1-800-TLC-GROW | Life after brain injury. Techniques for finding solutions to problems. ($75.00, $200.00 for set of 3). Extra workbooks are available for $5.00 each. Series sample tape is available for $5.00. |
| video | Rehabilitation and you | The Transitional Learning Community 1528 Postoffice Street Galveston, TX 77550 1-800-TLC-GROW | How to make rehabilitation work best for you. ($75.00, $200.00 for set of 3) Extra workbooks are available for $5.00 each. Series sample tape is available for $5 |
| Phase III Top of page | |||
| article | Living With a Head Injury (Belinda Talbert, 1991) | Cognitive Rehabilitation (January, 1991), special issue, pp 2-17. | This is a well-written and detailed story as told by a TBI survivor. The author discusses her surprise regarding how much her head injury impacted her life and how much work and time was required to readjust. |
| article | Fact Sheets: Hiring In-home Help How to Form a Support Group Caregiving Out-of-Home Care Options Advocacy Tips for Family Caregivers Work and Eldercare Assisted Living and Residential Care Facilities --plus others | Family Caregiver Alliance 425 Bush Street, Suite 500 San Francisco, CA 94108 (415) 434-3388 FAX: (415) 434-3508 E-mail: info@caregiver.org Web: http://www.caregiver.org | Good information with resources and hotlines on the back. May be somewhat more relevant for people who live in California. Families may want to order separately: up to 5 titles: $1.00;up to 6 titles, $2.00 Professions may want to order complete set with binder: $15.00 Many are available in Chinese and/or Spanish |
| article | Sex and the Brain-Injured Patient: Regaining Love, Pleasure, and Intimacy (L. Miller, 1994). | The Journal of Cognitive Rehabilitation. May/June. | This article is specific and covers many important areas. It is a good article for families and for therapists to read. |
| book | Profiles in Caregiving: The Unexpected Career (Carol Aneshensel et al., 1995) | Academic Press 525 B St., Ste. 1900 San Diego, CA 92101-4495 1-800-321-5068 | A scholarly compendium of care giving with discussion of implications for public policy. This may be less suitable and less interesting for lay audiences. ($39.95) |
| book | Vocational Rehabilitation for Persons with Traumatic Brain Injury. (Wehman and Kreutzer eds., 1990) | Aspen Publishers Inc. 1900 Research Blvd Rockville, MD 20850 1-800-638-8437 | This is an edited book for health care professionals. ($66.00) |
| book | The 1997 Brain Injury Association National Directory of Brain Injury Rehabilitation Services | Brain Injury Association, Inc. (See below) | Desk reference for professionals listing brain injury rehabilitation programs and individual service providers nationwide. 393 pages. ($45.00) |
| book | Planning for the Future: Providing a Meaningful Life for a child with a Disability after Your Death | Brain Injury Association, Inc. (See below) | ($24.95) |
| book | An Educational Challenge: Meeting the Needs of Students with Brain Injury (Dana S. DeBoskey, Ph.D.) | Brain Injury Association, Inc. (See below) | ($14.50) |
| book | Sexuality and the Person with Traumatic Brain Injury (E.R. Griffith, S. Lemberg, 1992) | Brain Injury Association, Inc. (See below) | ($18.95) |
| book | Living With Head Injury: A Guide for Families (R. Senelick & C. Ryan, 1991) | Brain Injury Association, Inc. (See below) | ($8.95) |
| book | National Directory of Head Injury Rehabilitation Services (1993) | Brain Injury Association, Inc. (See below) | ($40.00) |
| book | Why Did it Happen on a School Day? My Family's Experience with Brain Injury (1995) | Brain Injury Association, Inc. (See below) | ($10.00) |
| book | Integrating Community Resources | HDI Publishers (See below) | ($16.50) |
| book | The TBI Tool Kit | HDI Publishers (See below) | ($24.95) |
| book | Working After Brain Injury | HDI Publishers (See below) | ($12.50) |
| book | Respite Care: Principles, Programs and Policies (S. Cohen and R. Warren, 1989) | PRO-ED Publishers | This book is out of print but may be available at a library. |
| book | The Psychological and Social Aspects of Disability (R.P. Marinelli and A.E. Dell Orto, 1991) | Springer Co. Publishers | Publisher is out, may be available through library. May be reprinted in the future. |
| book | Teaching the Head Injured: What to Expect (1987) | Tampa General Rehabilitation Center The Tampa General Hospital Tampa, FL | Outline format of information to review with children and their teachers. |
| book | The Head-Injured College Student (C.B. Holmes, 1988) | Charles C. Thomas Publishers Springfield, IL | This book is out of print but may be available at a library. |
| book | Parenting a Child with Traumatic Brain Injury (B.K. Hughes, 1990) | Charles C. Thomas Publishers Springfield, IL | Can be ordered through a book store ($29.95) |
| booklet | Staying at Home A Guide to Long-term Care and Housing (1996) | American Association of Retired Persons 601E Street, NW Washington, DC 20049 | Excellent publications with list of important issues to consider and state/national resources. |
| booklet | When Your Child Goes to School After an Injury (M. Lash, 1992) | Brain Injury Association, Inc. (See below) | ($7.50) |
| booklet | Susan's Dad: A Child's Story of Head Injury (L.E. Leaf, 1988) | Brain Injury Association, Inc. (See below) | |
| booklet | Hearing Loss Following Head Injury (1984) | Brain Injury Association, Inc. (See below) | ($1.00) |
| booklet | Neuropsychology of Attention and Memory (M.J. Nissen, 1986) | Brain Injury Association, Inc. (See below) | ($1.50) |
| booklet | From One Family Member to Another (E. Burke, 1984) | Brain Injury Association, Inc. (See below) | A mother tells the story of her son's injury and recovery. Gives suggestions for structuring the home environment. ($1.00) |
| booklet | Living with Chronic Pain (HDI Coping Series) | Brain Injury Association, Inc. (See below) | ($9.50) |
| booklet | When Your Child is Seriously Injured: The Emotional Impact on Families (M. Lash, 1990) | Brain Injury Association, Inc. (See below) | ($4.50) |
| booklet | Relationships Between Personality Disorders, Social Disturbances, and Physical Disability Following TBI (Muriel Lezak, 1987) | Brain Injury Association, Inc. (See below) | ($3.00) |
| booklet | Educational Concerns for the Traumatically Head Injured High School and College Student (R. Savage, 1987) | Brain Injury Association, Inc. (See below) | ($4.00) |
| booklet | Children with Disabilities: Understanding Sibling Issues (1988) | Brain Injury Association, Inc. (See below) | ($2.50) |
| booklet | Stress Management Following Head Injury: Strategies for Families and Caregivers (J. Falconer, 1984) | Brain Injury Association, Inc. (See below) | ($1.00) |
| booklet | Post-traumatic Headaches: Subtypes and Behavioral Treatments (Thomas Bennett, 1988) | Brain Injury Association, Inc. (See below) | ($3.00) |
| booklet | Counseling Head Injured Patients: Guidelines for Community Mental Health Workers (M. Blanchard, 1984) | Brain Injury Association, Inc. (See below) | ($4.00) |
| booklet | Brain Damage is a Family Affair (M. Lezak, 1988) | Brain Injury Association, Inc. (See below) | ($3.00) |
| booklet | Persisting Problems After Mild head Injury: A Review of the Post-concussive Syndrome (Lawrence Binder, 1986) | Brain Injury Association, Inc. (See below) | ($5.00) |
| booklet | The Head Injury Survivor on Campus: Issues and Resources (M.R. Ozer, HEATH Resource Center, 1988) | Brain Injury Association, Inc. (See below) | ($42.00) |
| booklet | Resource List of Organizations (C. Jensen for the NHIF, 1990) | Brain Injury Association, Inc. (See below) | List of organizations that assist persons with various special needs. ($4.00) |
| booklet | Hiring Persons with a Brain Injury: What to Expect | HDI Publishers (See below) | ($9.50 each) |
| booklet | Brain Injury: A Home Based Cognitive Rehabilitation Program | HDI Publishers (See below) | ($9.50 each) |
| booklet | Life After Brain Injury: Who am I? | HDI Publishers (See below) | A well-structured book. Discusses specific problem areas. Includes good examples and gives list of practical coping strategies. ($9.50) |
| booklet | Teaching Persons With A Brain Injury What to Expect | HDI Publishers (See below) | ($9.50 each) |
| booklet | Head Injury: Missouri Head Injury Guide for Survivors, Families and Caregivers | Missouri Department of Health, Division of Injury Prevention, Head Injury Rehabilitation and Local Health Services P.O. Box 570 Jefferson City, MO 65102 (573) 751-6246 | This booklet is very good, particularly about legal issues and insurance. For people who live in Missouri. |
| booklet | Respite Resource Guide | National Council on the Aging 409 3rd St., S.W. Suite 200 Washington, DC 20024 (202) 479-1200 | Guide for professionals, includes information on the different types of programs available. ($8.00 plus $2.00 shipping and handling) |
| booklet | How to Hire Helpers: A Guide for Elders and Their Families | Task Force on Aging Church Council of Greater Seattle 4759 15th Street, NW Seattle, WA 98105 (206) 525-1213 | How to advertise and interview and hire home help. Requires prepay or purchase order. 1-9 copies $3.50 ea; 10-24 copies $2.50 ea; 25-99 copies $2.00 ea; 100+ copies $1.50 ea |
| manual | Controlling Your Frustration: A Class for Caregivers | Family Caregiver Alliance 425 Bush Street, Suite 500 San Francisco, CA 94108 (415) 434-3388 FAX: (415) 434-3508 E-mail: info@caregiver.org Web: http://www.caregiver.org | Leader's manual ($15.00) Participant's manual ($10.00) |
| misc. | Life care planning forms | Brain Injury Association, Inc. (See below) | Come in sets of 17 forms to maintain records for all important issues in case management and life care planning (1 set-$5.00, 6 sets-$20.00, 12 sets-$35.00) |
| misc. | My Medical History and Medicine Record | University Physicians University Hospitals and Clinics Rusk Rehabilitation Center (573) 882-4997 | This is a pocket-sized, tri-fold card with medical record, doctors' phone numbers and medications lists, for patients to carry with them. Similar record keepers may be available through local hospitals and/or clinics. |
| pamph. | Resources for Families and Caregivers of Brain-Impaired Adults | Family Caregiver Alliance 425 Bush Street, Suite 500 San Francisco, CA 94108 (415) 434-3388 FAX: (415) 434-3508 E-mail: info@caregiver.org Web: http://www.caregiver.org | |
| pamph. | How to Choose a Home Care Agency | Homecare - The National Association for Home Care 228 Seventh Street, SE Washington, DC 20003-4306 (202) 547-7424 | Gives a good short description of types of home care and questions to review when hiring home care help. |
| video | A Fate Better than Death (1981) | Brain Injury Association, Inc. (See below) | Video features 4 young adults with traumatic brain injury. Focuses on support groups. ($70.00) |
| video | "When Billy Broke his Head...and Other Tales of Wonder" | Independent Television Service: 190 E. 5th Street St. Paul, MN 612/225-9035 Order from: Fanlight Productions 47 Halifax St., Boston Mass 02130 1-800-937-4113 | From the perspective of an actual head-injured patient. Billy tells story of rehabilitation and employment after MVA. "Realistic" with a "less than flattering view of Division of Vocational Rehabilitation" ($245.00. Can be rented for $50.00-$100, depending on time frame) |
| video | Returning to School Following Traumatic Brain Injury: A Guide for School Personnel | Natl. Information Clearinghouse (See below) | 60 minutes ($45.00) |
| video | Ethical Issues for Families of TBI Persons | Natl. Information Clearinghouse (See below) | 16 minutes. ($35.00) |
| Selected addresses Top of page | |||
| National Information Clearinghouse Rehabilitation Psychology and Neuropsychology Service Department of Physical Medicine and Rehabilitation P.O. Box 980542 Richmond, VA 23298-0542 (804) 828-9055 |
Brain Injury Association, Inc. (formerly the National Head Injury Foundation) 1776 Massachusetts Ave., NW Suite 100 Washington, DC 20036-1904 (202) 296-6443 FAX: (202) 296-8850 or: FAMILY HELP LINE 1-800-444-6443 |
HDI Publishers 10600 NW Freeway, Suite 202 P.O. Box 131401 Houston, TX 77219 1-800-321-7037 FAX: (713) 956-2288 | |
Find a trained mental health provider in your area of Missouri
Welcome | Who are we? | Staff | Related sites | Home
Copyright © University of Missouri-Columbia University of Missouri Health Care